• Researcher Profile

    Joanne Wolfe, MD, MPH

     
    Joanne Wolfe, MD, MPH
     
    Division Chief, Pediatric Palliative Care Service, Department of Psychosocial Oncology and Palliative Care
    Director, Pediatric Palliative Care, Medicine, Boston Children's Hospital


    Associate Professor of Pediatrics, Harvard Medical School

    Center/Program

    Pediatric Palliative Care

    Office phone: 617-632-5286
    Fax: 617-632-2270
    Email: joanne_wolfe@dfci.harvard.edu

    Preferred contact method: email

    View Physician Profile
     
     

    Research Department

    Medical Oncology/Population Sciences

    Interest

    Palliative care

    Area of Research

    Care of Children with Advanced Cancer


    Dana-Farber Cancer Institute
    450 Brookline Avenue
    Dana 2-012
    Boston, MA 02215

    Biography

    Dr. Joanne Wolfe is the Chief of the Division of Pediatric Palliative Care in the Department of Psychosocial Oncology and Palliative Care at the Dana-Farber Cancer Institute (DFCI) and the Director of Palliative Care at Boston Children’s Hospital (BCH), and is an Associate Professor of Pediatrics at Harvard Medical School.  She holds an MD degree (1990) from Harvard Medical School and an MPH (1998) from the Harvard School of Public Health.  The Pediatric Advanced Care Team (PACT), the palliative care service which she directs, received a 2001 Citation of Honor from the American Hospital Association’s Circle of Life Awards program for its innovative approach to caring for children with life-threatening illness.

    Recent Awards

    • American Cancer Society Pathfinder in Palliative Care Award, 2013
    • Schwartz Center Compassionate Caregiver Finalist, 2003, 2009
    • Citation of Honor, Circle of Life Award, 2001

    Research

    Care of Children with Advanced Cancer

    Dr Wolfe’s research is focused on easing suffering and promoting wellbeing in children with serious illness and their families. Using PediQUEST, a computerized data collection system, she completed a multicentered randomized trial aimed at assessing the effect of routinely providing child-reported symptom and quality-of-life feedback to clinicians and families. She found that feedback promotes child psychological wellbeing. PediQUEST is now web-based and is useful in all care settings, including home. Using this adaptation, she will study a strengthened intervention, PediQUEST Champions, adding a clinician whose mandate it is to respond to child distress. She also mentors junior investigators focusing on additional domains of distress including financial hardship, the stem cell transplant experience and resilience. Finally, she co-directs an emerging pediatric palliative care research network, “Peppercorn”.

    Select Publications

    • Wolfe J, Hammel JF, Edwards KE, Duncan J, Comeau M, Breyer J, Aldridge S, Grier HE, Berde C, Dussel V, Weeks JC.  Easing of Suffering in Children With Cancer at the End of Life: Is Care Changing?. Journal of Clinical Oncology, 2008;26(10):1717-1723.
    • Feudtner C, Kang T, Hexem K, Friedrichsdorf S, Osenga K, Siden H, Friebert S, Hays R, Dussel V, Wolfe, J.  Patients Receiving Pediatric Palliative Care Consultations:  A Prospective Multicenter Cohort Study. Pediatrics, 2011 Jun;127(6):1094-10, Epub 2011 May 9.
    • Kassam A, Skiadaresis J, Habib S, Alexander S, Wolfe J. Moving Towards Quality Palliative Cancer Care:  Parent and Clinician Perspectives on Gaps Between What Matters and What is Accessible. Journal of Clinical Oncology. Journal of Clinical Oncology. 2013; 31(7):910-15. Epub 2012 Nov 26.
    • Sanderson A, Zurakowski D, Wolfe J. Clinician Perspectives Regarding the Do Not Resuscitate Order. JAMA Pediatrics.  2013 Oct;167(10):954-8. Epub ahead of print 2013 August 26.
    • Wolfe J, Orellana L, Cook EF, Ullrich C, Kang T, Geyer J, Feudtner C, Weeks JC, Dussel V. Improving Care of Children with Advanced Cancer Using an Electronic Patient-Reported Feedback Intervention: Results from the PediQUEST Randomized Controlled Trial. Journal of Clinical Oncology. In press.

    Investigators

    • Ulrich, Christina, MD, MPH

    Trainees

    • Dussel, Veronica, MD, MPH
    • Bona, Kira, MD, MPH
    • Ananth, Prasanna, MD, MPH